Informant-based assessment instruments for dementia in people with intellectual disability: A systematic review and standardised evaluation

Autor(en)

Elisabeth Zeilinger, Irina Zrnic Novakovic, Sophie Komenda, Fabian Franken, Marc Sobisch, Anna-Maria Mayer, Lennart Neumann, Sandra Loosli, Sarah Hoare, Jakob Pietschnig

Abstrakt

Background
Dementia in people with intellectual disability (ID) is frequent but hard to recognise. Evidence-based recommendations for suitable instruments are lacking.

Aims
The present study set out to evaluate informant-based dementia assessment instruments and to provide evidence-based recommendations for instruments most suitable in clinical practice and research.

Method and procedures
A systematic review was conducted across ten international electronic databases. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) guidelines, including a risk of bias assessment, was applied to extract information and to evaluate measurement properties and the quality of available evidence.

Outcomes and results
In total, 42 studies evaluating 18 informant-based assessment instruments were analysed. For screening purposes, we recommend the Behavioral and Psychological Symptoms of Dementia in Down Syndrome Scale (BPSD-DS), the Cognitive Scale for Down Syndrome (CS-DS), and the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID). For a more thorough dementia assessment, we recommend the Cambridge Examination for Mental Disorders of Older People with Down’s Syndrome and Others with Intellectual Disabilities (CAMDEX-DS).

Conclusions and implications
Our study informs clinicians and researchers about adequate, well-evaluated dementia assessment instruments for people with ID, and highlights the need for high quality studies, especially regarding content validity.

Organisation(en)

Institut für Klinische und Gesundheitspsychologie, Institut für Psychologie der Entwicklung und Bildung

Externe Organisation(en)

Medizinische Universität Wien, Psychologische Hochschule Berlin, Universität Duisburg-Essen, Ludwig-Maximilians-Universität München, NELFT NHS Foundation Trust Goodmayes Hospital

Journal

Research in Developmental Disabilities

Band

121

Anzahl der Seiten

15

ISSN

0891-4222

DOI

https://doi.org/10.1016/j.ridd.2021.104148

Publikationsdatum

12-2021

Peer-reviewed

Ja

ÖFOS 2012

501010 Klinische Psychologie

Schlagwörter

ASJC Scopus Sachgebiete

Clinical Psychology, Developmental and Educational Psychology

Link zum Portal

https://ucrisportal.univie.ac.at/de/publications/informantbased-assessment-instruments-for-dementia-in-people-with-intellectual-disability-a-systematic-review-and-standardised-evaluation(7d354791-5f9e-4741-a928-c6a4e1715c8f).html